Featured Palliative Nursing Research Studies

Here, we profile active research studies in palliative care nursing that are relevant to the national landscape of palliative care nursing in Canada.

CPCNA is currently profiling:

Community-Based Palliative Care for Patients with Cerebral Palsy and Developmental Disabilities

The Intellectual and Developmental Disabilities (IDD) Research Group at Queen’s University is inviting you to participate in a research study.

Patients with CP and severe to profound IDD are living longer than ever before and are experiencing prolonged periods of frailty requiring complex end-of-life care. Many of these patients would benefit from a palliative approach to their care, however, palliative care for this population presents unique challenges. These challenges include management of complex symptomatology, difficult goals of care discussions and complicated end-of-life trajectories. 

They are recruiting healthcare providers who have experience providing palliative care to patients with CP and IDD to participate in our study. Participants can include physicians, nurse practitioners, nurses, physiotherapists, occupational therapists, dieticians etc.  The study process will include an online survey on the Qualtrics survey platform, and will assess participant’s comfort and knowledge in providing palliative care to this patient population. We anticipate that the survey will take no more than 10 minutes to complete. After completing the survey, participants will also have the option of participating in a one-on-one interview to further explore the topic. 

Click on this link if you are interested in participating:

https://queensu.qualtrics.com/jfe/form/SV_exO8SYfjnSdabZk

Participants will be recruited via snowball sampling, and so we encourage you to share this link with any of your colleagues who have experience providing palliative care to this patient population.

This research is being conducted in conjunction with the Centre for Studies in Primary Care in the Department of Family Medicine at Queen’s University. It has been reviewed for ethical compliance by the Queen’s University Health Sciences and Affiliated Teaching Hospitals Research Ethics Board (HSREB).

Ongoing Research

Family/Friend Caregiving in Manitoba during Covid-19

 

Researchers at the University of Manitoba are conducting a brief online survey of family/friend caregiving in Manitoba during the COVID pandemic. Led by professors Laura Funk (Sociology) and Jamie Penner (Nursing), the survey asks about the impact of COVID-19, including pandemic-related changes in health and social care systems, on family and friend caregivers.

This survey is designed for any Manitoban who takes on an unpaid caring role providing emotional, physical or practical support in response to a family member, neighbour or friend’s chronic condition, disability, drug or alcohol dependency, mental illness or cognitive impairment, terminal or serious physical illness, or age-related needs. This might be a new role to you during the pandemic or something you’ve been doing for quite some time.

 

If you are interested, please click the link below to view our survey. We anticipate that this survey will take approximately 15-20 minutes of your time. Information to help you decide whether to voluntarily consent will be available at the beginning of the survey.

 

https://umnursing.ca1.qualtrics.com/jfe/form/SV_aa5QB1pdaRcFawR

 

Thank you for considering this request. You can contact Dr. Laura Funk (Laura.Funk@umanitoba.ca) or Prof. Jamie Penner (Jamie.Penner@umanitoba.ca) if you have any further questions about this project.

 

This research has been approved by the Psychology/Sociology Ethics Board. If you have concerns or complaints about this project you may contact the above-named persons or the Human Ethics Coordinator (HEC) at 204-474-7122 or humanethics@umanitoba.ca